New York - Greater Rochester and the Finger Lakes

PO Box 124
Fairport, New York 14450
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Details

The Tourette Association of America New York – Greater Rochester and the Finger Lakes Chapter is a volunteer led, nonprofit organization supporting the needs of individuals and families affected by Tourette Syndrome and Tic Disorders. We are committed to raising public awareness and fostering social acceptance; advancing scientific understanding, treatment options and care; educating professionals to better serve the needs of children, adults and families challenged by Tourette and Tic Disorders; advocating for public policies and services that promote positive school, work and social environments; Providing help, hope and a supportive community across the nation; and empowering our community to deal with the complexities of this spectrum of disorders.

Events

Turn Niagara Falls Teal for Tourette Awareness - June 15

How Awesome! Niagara Falls will be lit in Teal for the ned of Tourette Awareness Month!

Kicking off with a picnic around 7/7:30 with giveaways and games in the park. Walk down to the falls around 10:00 for the lighting

Be sure to register, so we know you’re coming.

Tourette Association of Greater NY State

Tourette Association of Greater Rochester & Finger Lakes

Registration Form for Niagara Falls Awareness Event

Name: ____________________________________________________

# of people attending:  Adults _____ Children 16 or under ________

Email address:  _____________________________________________

Phone #: Home ___________________ Cell __________________

We will be grilling and providing hot dogs, rolls, potato salad, coleslaw, chips and other snacks, condiments and all the paper products.  We ask you to bring your own drinks and a dessert to pass.  We are planning some activities for the kids after the picnic.

  A map of the park is attached.  You will park in Parking Lot # 2 as seen on the map.  There is a $10.00 charge for parking but if you come early, you can park there all day for one charge.

The picnic area we are using is adjacent to the parking lot.  After the picnic, we will walk down together to Terrapin Point (see map) to view the illuminations at about 10:00 PM, take pictures, etc. 

 YOU MUST PRE-REGISTER!!

 You can email the registration form above to conners@roadrunner.com

or mail it to the address below.  WE MUST RECEIVE YOUR REGISTRATION BY JUNE 13.  Once you are registered, we will email you directions to the park.  The map is attached.

 

 TAA of Greater NY State. 20 Thomas Jefferson Lane. Snyder, NY  14226

 

Link to PDF
Chapter Family Night with the Redwings at Frontier Field - June 30
Sunday Movie Matinee - July 1st 10:30am

Services

Tourette Association New York Centers of Excellence

New York State Consortium
Weill Cornell Medical College
New York, NY
Director: John Walkup, M.D.
Co-Director: Shannon Bennett, Ph.D.
(212) 746 1891

Northwell Health
Manhasset, NY
Director: Cathy Budman, M.D.
Co-Director: Jane Zwilling, Psy.D.
(516) 562-3223

University of Rochester Medical Center
Rochester, NY
Director: Jonathan Mink, M.D., Ph.D.
Co-Director: Heather Adams, Ph.D.
(585) 275-2808

Ichan School of Medicine at Mount Sinai
New York, NY
Director: Barbara Coffey, M.D.
Co-Director: Wayne Goodman, M.D.
(212) 659-1677

Youth Ambassador Program

The TAA Youth Ambassador Program brings together, trains and supports teens to advocate for and talk about Tourette and Tic Disorders in their community, with their elected officials and before their peers at school, sports leagues, scout troops, camps and after-school programs. Learn More

Education In-Service

The TAA conducts in-service presentations around the state with various schools on an as needed basis. It can make a tremendous difference in your child’s academic experience to have the school staff educated about the many facets of TS. Learn More

Parent Support Group

Specifically for parents of children with TS and significant behavioral issues. This group meets on the second Monday of each month at Starbridge, 1650 South Ave, Suite 200. Rochester, NY 14620. (Just south of Elmwood Ave) 585-224-7364 for details.

Location: Starbridge, 1650 South Ave Suite200, Rochester NY14620

Leadership

Gary Wainwright, Chapter Chair
Katy Tumia, Vice Chair
Robert Gleason, Treasurer
Amy Vierhile, Secretary
Diana Pratt, Board Member & YA program coordinator
Ben Bills, Board Member