Getting a Diagnosis for Tourette Syndrome or Tic Disorders
Some families of children with Tourette Syndrome trek from physician to physician in search of an answer, and wait months or even years before they are given a correct diagnosis. The clarity that the diagnosis brings to patient and family, and the chance to begin to truly manage the condition can be an incredible relief.
To help people obtain a proper diagnosis when Tourette or Tic Disorders are suspected, the Tourette Association of America has compiled a list of Medical and Allied Professionals who are knowledgeable about this spectrum of neurological disorders. We have also established a network of “Centers of Excellence,” which are models of coordinated care for Tourette and Tic Disorders within healthcare and hospital systems. Click here to FIND A DOCTOR.
The Tourette Association of America hosts numerous free webinars, Twitter “Chats,” and education programs throughout the year and across the country. Annually we host a special seminar (fee) for Newly Diagnosed. To learn about our events and programs, join our email list (Your contact information will not be shared with other parties), visit our events page, or follow us on social media.
The Tourette Association also has Chapters across the United States that can provide local support groups an other resources.
The Prognosis – What Will Happen?
Years ago, with little or no knowledge of Tourette Syndrome, the prognosis was vague. During the past 20 years, doctors have followed many more people with Tourette and Tic Disorders, so a considerable amount of information and treatment options are now available. People with vocal or motor tics may expect to lead fairly normal lives.
Four factors are important:
- The severity of symptoms.
- How well-adjusted the patient was before the onset of symptoms.
- The relationship between the patient and his or her family or support network
- The treatment used, how soon treatment was begun after onset of symptoms and the patient’s response to treatment.
The Tourette Association provides the most current information on the disorder, treatment options, support services, and tools for living with Tourette (for people of all ages).