NEW! Online Support Groups for Young Adults and Parents

In cooperation with the Centers for Disease Control and Prevention, the Tourette Association of America is pleased to offer a new series of online support groups both for young adults and for parents.  These support groups are available for people who may be located in an underserved area without access to support.  Each support group will meet approximately every other Tuesday twice a month for 6 months.  The support groups will be moderated by Eva Tukuafu, MSW, LCSW.

The only equipment you will need to participate is an internet connection and a working microphone on your computer.  You will be able to see the moderator on her web cam.

Dates and List of Topics for Young Adults:

  • January 30, 2018 – Introduction: We’re All a Little Different
  • February 13, 2018 – Tics and Relationships: Dating and Romance
  • February 27, 2018 – Tics and Relationships: Family Matters
  • March 13, 2018 – Meeting New People
  • April 3, 2018 – School & Work: Accommodations and Rights
  • April 17, 2018 – School & Work: Finding Something You Love
  • May 1, 2018 – Managing Conflict
  • May 15, 2018 – Study and Time Management Skills
  • May 29, 2018 – Coping With Comorbidities: Fight or Flight? Stress Management
  • June 12, 2018 – The Great Thing About Grey: Avoiding Extremes
  • July 17, 2018 – Challenging Our Thoughts: Thinking Errors 101
  • August 7, 2018 – How to Mess Up and Still Keep Going: Managing TS Over a Lifetime

The group runs from 6:00 to 7:30 PM Eastern time.

Dates and List of Topics for Parents:

  • February 6, 2018 – Introduction: The Hardest Job on Earth: Parenting
  • February 20, 2018 – Coping with the Comorbidities: Is it a a Tic or Acting Act? The Discipline Dilemma
  • March 6, 2018 – Focus & Attention: The Stress of Repeating Yourself
  • March 20, 2018 – Impulsivity and Rage
  • April 10, 2018 – School & Learning: Accommodations and Rights
  • April 24, 2018 – School & Learning: Working with Your Education Team
  • May 8, 2018 – Managing Conflict
  • May 22, 2018 – Study and Time Management Skills
  • June 5, 2018 –  TS and Relationships: Sibling Rivalry and a Child with Special Healthcare Needs
  • June 26, 2018 – TS and Relationships: Making Friends and Appreciating Differences
  • July 10, 2018 – Encouraging Independence as a Parent
  • July 31, 2018 – How to Mess Up and Still Keep Going: Parenting Life Lessons

The group runs from 6:00 to 7:30 PM Eastern time.

To register for either the parent or young adult support group, please contact Chelsea Tollner, CDC Program Director, at chelsea.tollner@tourette.org or at 718-224-2999, ext. 232.

 

All registrants must be signed up by Friday, January 26, 2018.

 

PLEASE NOTE: Space for these support groups is extremely limited and registration is on a first come, first serve basis.  Due to the limited space, please only register to join if you intend to be fully involved and participate in all of the group sessions.

Eva Tukuafu, MSW, LCSW, is a clinical program manager and social worker in the Department of Neurology at the University of Utah and is a PhD student in the College of Social Work, where her research focuses on neurological social work care. Ms. Tukuafu joined the department in April 2015 in a newly created position designed to integrate behavioral health into clinics to help meet patients’ needs and as a coordinator for the movement disorder patient Centers of Excellence.  She provides clinical care in the Muscular Dystophy, ALS (Lou Gehrig’s), Huntington Disease and Tourette Syndrome clinics and facilitates several of the department’s patient support groups and specializes in teaching Grief & Loss therapies, chronic health coping skills, Cognitive Behavioral therapies and psychosocial functional assessments. She also creates and coordinates the Neurology Social Work Training Program, which she designed to give graduate level social work students more direct clinical practice with neurological conditions.  Ms. Tukuafu is certified in Comprehensive Behavioral Intervention for Tics (CBIT) through the Tourette Association of America. Eva also remains actively involved in Huntington Disease and Tourette Syndrome clinical research and has previous experience working in geriatrics and psychiatry (inpatient) and providing behavioral therapy for children with Autism.