Missouri Chapter

6526 Parkwood Place
St. Louis, MO 63116
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Details

The Tourette Association of America Missouri Chapter is a volunteer led, nonprofit organization supporting the needs of individuals and families affected by Tourette Syndrome and Tic Disorders. We are committed to raising public awareness and fostering social acceptance; advancing scientific understanding, treatment options and care; educating professionals to better serve the needs of children, adults and families challenged by Tourette and Tic Disorders; advocating for public policies and services that promote positive school, work and social environments; Providing help, hope and a supportive community across the nation; and empowering our community to deal with the complexities of this spectrum of disorders.

Missouri also has a Tourette Association Center of Excellence at Children’s Mercy Hospital.

Services

Meetings & Events

Our chapter hosts a number of meetings and events throughout the year.

2017/18 Events and Activities Schedule

 

Unless otherwise indicated, events will be held in the St. Louis area.  Where available, follow the provided links for more information.
2017/18 Events and Activities Schedule:
April, 2018  –  Tourette’s Syndrome Spring Meeting: An Evening with the Experts!
WHEN:            Thursday, April 5, 2018 @ 7:00 P.M.
WHERE: Destiny Church (basement rear entrance): 1809 Des Peres Road, StL 63131
Spend an evening with various experts in the field of Tourette Syndrome.  Hear personal stories, the newest information on research, medications, treatments, and therapies.  Bring your current questions and concerns to discuss with our Professional Panel. We will be featuring:
Dr. Kevin Black/NeuroPsychiatrist & Dr. Sheel Pathak/Pediatric Neurologist, leading neurologists from the Washington Univ. Movement Disorders Clinic.
Karen Balk/Occupational Therapist, currently working with CBIT (Cognitive Behavior Intervention for Tics) therapy.
Drew Guise – Young adult with Tourette and our Ambassador for Youth.
Lynn Dunlap – Special Educator & School Psychogical Examiner.
Families are Welcome.  Babysitting will be available.

June, 2018 – Family Picnic/Pool Party (details and location pending)

Government/ State Policy Information

Contact:

Marty Guise

314 – 540 – 0544

Greater Kansas City Area

Contact:
Joseph Grappone
718-224-2999 ext. 228
joseph.grappone@tourette.org

Tourette Association Center of Excellence Children’s Mercy Hospital

Tourette Association Center of Excellence Children’s Mercy Hospital, Kansas City, MO
Kansas City, MO
Director: Keith Coffman, M.D.
Co-Director: James Batterson, M.D.
(816) 234-3674
Learn more about the TAA Centers of Excellence Program!

Youth Ambassador Program

The TAA Youth Ambassador Program brings together, trains and supports teens to advocate for and talk about Tourette and Tic Disorders in their community, with their elected officials and before their peers at school, sports leagues, scout troops, camps and after-school programs. Learn More

The Greater MO Chapter has a specially trained ambassador who can speak directly to children and youth. To contact the current ambassador, Drew Guise, call 636 – 938 – 3858.

Education In-Service

The TAA conducts in-service presentations around the state with various schools on an as needed basis. It can make a tremendous difference in your child’s academic experience to have the school staff educated about the many facets of TS. Learn More

To contact the Greater MO Chapter Educational Liaison, Lynn Dunlap, call 314 – 984 – 9019.

Leadership

Lynn Dunlap, Chapter Chair / Educational Liaison
Mike Catanzaro, Treasurer
Marty Guise, Vice Chair
Diana Guise, Secretary
Christy Kazprzyk, Board Member
Maureen Downey, Board Member
Karen Balk, Board Member / CBIT Advisor
Drew Guise, Board Member / Ambassador to Children and Youth
Carla Owens, Board Member
Sheel Pathak, Pediatric Neurology
Kevin J. Black, M.D., Medical Advisory Board Member
Brad A. Racette, M.D., Medical Advisory Board Member
Bradley Schlaggar, M.D., Ph. D., Medical Advisory Board Member
Jacquelyn C. Schnidman, M.D., Medical Advisory Board Member