Public Policy and Tourette

The Tourette Association of America’s Public Policy office advocates for policies that support the Tourette Syndrome and Tic Disorder community. We represent the interests of hundreds and thousands of people across the country before Congress, the White House and federal agencies. A crucial part of Advocacy is the network of Chapters and members who work with our office to communicate directly with their elected officials at the federal level.
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The issues that the organization monitors and voices views on include: education and disabilities, general health care, funding of research, and prevention of genetic and other forms of medical discrimination. As a member of several larger Health and Education Coalitions, the Tourette Association advocates for or against specific legislation that would significantly affect people with Tourette and Tic Disorders. The Public Policy Office lobbies specifically for Tourette Syndrome and leads Tourette specific legislative Issues.

The Tourette Association has taken the lead in developing the Tourette Syndrome Caucus made up of members of Congress.

Advocating for public polices and services that promote awareness, research and support is integral to our mission. Take Action Today!

Meeting with your Representative


This video was provided courtesy of NAEMT and Holland & Knight. While not Tourette specific, the video contains useful information on how to meet with elected officials.