Children’s Health Act
The Children’s Health Act, signed into law in 2000, is a lengthy bill containing beneficial provisions on numerous specific diseases and problems affecting children. Title 23 is captioned “Children and Tourette Syndrome Awareness” and authorizes grants and programs to educate the public, care providers, and teachers about Tourette Syndrome, with particular emphasis on minority populations.
Programs that promote early diagnosis and treatment of children with TS would make a tremendous difference in their lives. This is especially true for minority groups, since members of these groups are underrepresented in support and treatment programs, despite research showing that the disorder occurs with similar prevalence in all ethnic and nationality groups.
With the help of the Children’s Health Coalition, we were able to get report language in the Senate Labor, Health and Human Services, and Education, and Related Agencies Appropriations Bill (S. Rept. 107-84) urging the National Institutes of Mental Health “to develop a public education program that would reach parents, educators, pediatricians, family physicians, and other health care professionals.” Unfortunately TS was not included in the final appropriations bill, but the report language was another major victory for TS.
Our work continued to encourage Congress to include funding in the fiscal 2014 Labor, Health and Human Services, and Education, and Related Agencies Appropriations Bill, for the TS program at the National Center on Birth Defects and Developmental Disabilities, at the US National Centers for Disease Control and Prevention.
Public Law for Children’s Health Act