Integral to The Tourette Association’s mission to make life better for people with Tourette or Tic Disorders is our commitment to advance scientific research and understanding through our Research Grants and Fellowships Program. Since the inception of this Program in 1984, the Tourette Association has awarded more than $21 million to 250 scientists working in basic scientific and clinical TS research. Projects funded by the organization have provided crucial insights into many areas of the disorder. Funding from the Tourette Association has also encouraged many investigators to become and/or remain involved in pursuing TS research. Further, numerous studies that received seed funding from the Tourette Association have produced results that garnered the interest and investments of larger stakeholders including the National Institutes of Health and private companies. In this way, the investments in researchers made initially by the Tourette Association have been leveraged many times over.

Click here to read our latest Research Progress Report

TAA has funded transformational research

Tourette Funded Studies

Mindfulness-Based Intervention for Adults With Tic Disorders

Online Mindfulness-Based Tic Reduction: Development and Testing

Principal Investigator: Hannah Reese, Ph.D.

Bowdoin College

 

WHO: Adults with Tourette Syndrome or Persistent (Chronic) Tic Disorder

WHAT: Pilot study of a novel 8-week online mindfulness-based intervention for tics.  The intervention consists of 1-1.5 hour weekly self-guided online mindfulness lessons, home practice (30 minutes 4-6x/week), a weekly 1-hour group videoconference, and online questionnaires.  Assessments will also be conducted before and after the intervention.

WHERE: Online with researchers from Bowdoin College and Massachusetts General Hospital

COMPENSATION: $240

CONTACT: Jin Shin: (617) 724-4354, jshin15@mgh.harvard.edu

For more information: https://research.bowdoin.edu/tic-treatment-study

Hannah E. Reese, Ph.D., Principal Investigator

Bowdoin College

(207) 798-4146

hreese@bowdoin.edu

Proof of Concept Study on the Effect of an Oral Orthotic on Tic Severity New York, NY

The Weill Cornell Medical College Department of Child and Adolescent Psychiatry is conducting a study that will test a piece of dental equipment in children and young adults with chronic tic disorders and Tourette syndrome.

Eligibility: Children and young adults ages 7-25 who make sounds or movements that they cannot control like eye blinking, facial grimaces, arm or leg twitches, throat clearing, sniffling, or other noises. If you or your child meet this criteria, you may be eligible to participate in the research study.

Study Design:

  • The study involves:
  • 5 visits
  • Medical and psychological evaluations
  • Fitting for a therapeutic dental appliance

Information/Contact: For more information please call the Weill Cornell Medical College, Department of Child and Adolescent Psychiatry at 212-746-5930

6/26/14

Neuroimaging - Tourette Association Neuroimaging Pilot Study Baltimore, MD; New York, NY; St. Louis, MO & Los Angeles, CA

In 2012, the Tourette Association re-launched its neuroimaging consortium with a grant award of $500,000. The PI’s of the new group are Bradley Schlaggar, M.D., Ph.D. and Kevin Black, M.D., both at the Washington University School of Medicine, St Louis, MO. The initial aims of the consortium are to develop a multisite working partnership; generate and reconcile pilot data from small scale fMRI studies conducted at different sites; and craft a grant application to obtain more substantial funding from the NIH to determine the neural changes that underlie TS.

If you would like to learn more about participating in this study, please contact the Study Coordinator closest to you.

 

If you would like to learn more about participating in this study, please contact the Study Coordinator closest to you.

Location: Kennedy Krieger Institute /John Hopkins University, Baltimore, MD

Principal Investigator: Stewart Mostofsky, M.D. & Harvey Singer, M.D.

Study Coordinator: Carrie Nettles: Nettles@kennedykrieger.org
(443) 923-9263

Location: New York University, NY

Principal Investigator: Adriana Di Marino, M.D.

Study Coordinator: Jessica Sunshine: sunshj01@nyumc.org

(212) 263-4723

Location: Washington Univeristy School of Medicine, St. Louis, MO

Principal Investigator: Bradley Schlaggar, M.D., Ph. D & Keving Black, M.D.

Study Coordinator: Amber Spies: spiesa@npg.wustl.edu

317-362-5041

Location: University of California, Los Angeles, CA

Principal Investigator: John Piacentini, Ph.D. & James McCracken, M.D.

Study Coordinator: Olivia Johnson: Ojohnson@mednet.ucla.edu

(310) 825-2064

Magnetic Resonance Imaging (MRI) of Brains of Children with TS Baltimore, MD

The Laboratory for Neurocognitive Imaging Research at the Kennedy Krieger Institute is currently recruiting children with Tourette Syndrome ages 9 to 12 to participate in an MRI research study to learn if there are differences between the brain’s structure and its function in children with and without Tourette Syndrome.

WHAT: The study involves one day of testing, including IQ testing, computer games, paper & pencil tasks, and a Magnetic Resonance Imaging (MRI) scan of the brain.

COMPENSATION: You will receive a copy of your child’s IQ report and $50.00

CONTACT: If you are interested please contact Carrie Nettles at 443-923-9263 or by email her at Nettles@kennedykrieger.org

Brain Differences in Children with TS Baltimore, MD

WHO: Children, ages 5-12 years, with Tourette’s

WHAT: 1-2 days (about 6 to 8 hours) of computer games, paper & pencil tasks and a Magnetic Resonance Imaging (MRI) of the brain. You will receive the results of the IQ testing and get a picture of your brain. Parents and teachers will complete a telephone screen, questionnaires, rating scales, and a structured interview.

COMPENSATION: You will receive a copy of your child’s IQ report and $50.00

WHERE: Kennedy Krieger Institute & Johns Hopkins Hospital

BENEFIT/RISK: There are no direct medical benefits or significant risks for participating in this study.

COMPENSATION: $50.00

CONTACT: Tina Kline: (410) 955-1960, tkline@jhmi.edu

E. Mark Mahone, Ph.D., Principal Investigator (NA_00028776), Kennedy Krieger Institute, Johns Hopkins School of Medicine.

Harvey Singer, MD, Co-investigator (NA_00028776), Johns Hopkins School of Medicine

Genetics - Tourette Association International Genetics Consortium Research Centers throughout the USA

There is compelling evidence to suggest that the inheritance of certain genes causes or contributes to the development of TS. The Tourette Syndrome Association’s International Consortium for Genetics (Tourette AssociationICG) has identified several chromosomes that may contain genes that predispose individuals to TS. In 2010, the Tourette AssociationICG received a grant of $1.8 million as part of the federal stimulus plan – the American Recovery and Reinvestment Act (ARRA) of 2009.  The ARRA funding will be used to confirm previous gene findings by collecting DNA from an additional 3,000 individuals with TS.
Anybody older than 6 years of age with a confirmed diagnosis of TS can participate in the study. Involvement in the study includes completing a questionnaire about tics and related problems and giving a blood sample for genetic analysis. Some people will also be asked to complete an optional interview. Interested participants can learn more about the study by visiting www.findtsgenes.org or calling 1-877-883-9950.

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Non-Tourette Association Funded Studies

The studies below are listed for informational purposes only. A more comprehensive list of opportunities to participate in research studies in your area can be found on www.clinicaltrials.gov.

To list an IRB-approved study on this page, contact Denise Walker in the national Tourette Association office Denise.Walker@tourette.org

Biofeedback as a new treatment for Chronic Tic Disorder or Tourette Syndrome, New Haven, CT

Does your child have Chronic Tics or TS?

The Yale Magnetic Resonance Research Center is seeking research participants age 11-19 to evaluate biofeedback as a new treatment for Chronic Tic Disorder or Tourette Syndrome.

Total of 7 MRI scans, Compensation up to $600

Interested participants and family members should contact Christopher Walsh, Yale Magnetic Resonance Research Center
phone: (203)737-6055 email: christopher.walsh@yale.edu
Travel reimbursement available when one-way distance is 30 miles or greater
HIC #0206017435

CBIT Study For Children Ages 11-17 with Tics & ADHD, Massachusetts

Is your child suffering from tics and ADHD? If you have a child aged 11-17 who is bothered by tics and ADHD symptoms, we may be able to help. The Massachusetts General Hospital is conducting a no-cost clinical trial with children (ages 11 to 17 years) who are both bothered by their tics and are suffering from ADHD. Children who are eligible for the study will receive a diagnostic evaluation and either a standard or modified course of comprehensive behavioral intervention for tics at no cost. For more information, please 617-643-6204 or email jfehring@mgh.harvard.edu.

T-Force Gold - Research Study for Children and Adolescents with Tourette Syndrome Nationwide

A clinical research study for children and adolescents with Tourette Syndrome.

Neurocrine Biosciences invites boys and girls aged 6 to 17 who have a diagnosis of Tourette Syndrome to see if they may qualify for the T-Force Gold Study. The primary purpose of this research study is to determine the effectiveness, safety, and tolerability of an investigational medication for Tourette syndrome.

Each child will be evaluated to determine his or her eligibility to participate in the research study. All who qualify will receive the study medication and study-related medical exams and laboratory tests at no cost. Compensation for time and travel may also be available.

If you have friends or family who are also affected by Tourette Syndrome, we encourage you to pass this information along.  We encourage you to talk to your child’s doctor or contact the participating physician in your area,

Visit TForceGold.com or ClinicalTrails.gov to learn more

Arkansas
Dr. Hudefi
Springdale, AR
(479) 927-3000

California
Dr. McManus
San Diego, CA
(619) 692-1003

Dr. Moon
Santa Ana, CA
(714) 542-3008 ext. 307

Dr. Walsh
Anaheim, CA
(714) 999-6688

Florida
Dr. Castro
Hialeah, FL
(786) 536-4177

Dr. Jones
Jacksonville, FL
(904) 281-5757

Dr. Mauney
Gulf Breeze, FL
(850) 934-1299

Dr. Molpus
Orlando, FL
(407) 425-5100

Dr. Murphy
St. Petersburg, FL
(727) 767-8230

Dr. Nadjafi
Orlando, FL
(407) 921-2448

Dr. Pfeffer
Miami, FL
(305) 643-8400

Dr. Rodil
West Miami, FL
(305) 704-7122

Dr. Sanchez-Cazau
Miami, FL
(305) 889-6670

Dr. Strassnig
Boca Raton, FL
(561) 297-0164

Dr. Yokum
Tampa, FL
(813) 849-5566

Hawaii
Dr. Mee-Lee
Honolulu, HI
(808) 538-2800

Illinois
Dr. Baber
Naperville, IL
(630) 740-1451

Dr. Plyler
Chicago, IL
(773) 282-9845

Kansas
Dr. Mays
Leawood, KS
(913) 638-3046

Michigan
Dr. Jackson
Bloomfield Hills, MI
(248) 290-5400

Dr. Rajarethinam
Ann Arbor, MI
(734) 834-8954

Nebraska
Dr. Duffy
Lincoln, NE
(402) 476-6060, Option 4

New Hampshire
Dr. Hafez
Nashua, NH
(603) 880-9880

New York
Dr. Faedda
New York, NY
(646) 678-4196

Oklahoma
Dr. Sebastian
Oklahoma City, OK
(405) 843-0374

South Carolina 
Dr. Lauerer
Charleston, SC
(843) 518-5642

Tennessee
Dr. Arnold
Memphis, TN
(901) 843-1045

Texas
Dr. Ali Mohammad
Dallas, TX
(469) 730-3282

Dr. Earle
Houston, TX
(281) 218-8080

Dr. Jankovic
Houston TX
(713) 798-6556

Dr. Knesevich
Irving, TX
(972) 717-6262

Dr. Tomasovic
San Antonio, TX
(210) 949-0505

Washington
Dr. Knutson
Everett, WA
(425) 443-9551

Dr. Phillips
Tacoma, WA
(253) 403-9348

01/12/18

Sensory experiences in children and adults with tics. Online Survey - Nationwide

Do you or your child suffer from Tourette syndrome or Chronic Tic Disorder?

The Department of Psychology at Texas A&M University is conducting an online psychology study that aims to better understand tic disorders and related conditions. If you are an adult who has Tourette syndrome or Chronic Tic Disorder, you can participate in the current study. Or, if you have a child or adolescent who has Tourette syndrome or Chronic Tic Disorder and is between the ages of 7-17, your child can participate in the study. Parents must be present in order to provide permission for their child to participate, and parents will be asked to fill out several questionnaires along with their children.
Once you click the link, you will read a brief description of the study, be provided contact information for the researchers should you have any questions, and then be assessed for eligibility. Persons who are addicted to alcohol or drugs, have been diagnosed with a psychotic disorder (e.g., schizophrenia) or autism spectrum disorder, or have certain neurological disorders will be asked to refrain from participating.
If you meet the criteria for this study, you can take part on your computer/tablet/or smartphone at home! Taking part in the study involves completing a battery of questionnaires on your electronic device. It should take between 45 minutes to 1 hour to complete. Once you have completed the study, you can enter your contact information to be entered into a lottery drawing for a $25 gift card to Amazon.com. A total of 10 gift cards will be awarded, and your odds of winning depend on the number of participants who enter the lottery.
If you are interested in taking part, click here!
If you have questions, please email davidhoughton@tamu.edu
TAMU IRB #2015-0775D Approved: 01/15/2016 Expiration Date: 01/15/2017

Research Study Examining Brain-Behavior interactions in Teens with Tics Providence, Rhode Island

The New Tics Study: A Novel Approach to Pathophysiology and Cause of Tic Disorders - St. Louis, MO

Caregivers & Parents of Children Who Have Been Diagnosed with Tourette Syndrome - Online Survey Nationwide

Study Name:Caregivers & Parents of Children Who Have Been Diagnosed with Tourette Syndrome

Eligibility: You need to be a caregiver of or parent to a child who has been diagnosed with Tourette Syndrome. You must be over 18 years old.

Description: For this study, Research Now (www.researchnow.com) is working with a leading medical research firm, to understand the perspectives of caregivers or parents of children who have been diagnosed with Tourette Syndrome. Our objective is to understand how the condition is managed, as well as the disease’s impact on day-to-day life.

If you agree to participate in the study, you will be asked to complete a 45-minute online survey. You will be paid $50* upon completion of the survey for your time and responses.  In addition, Research Now will donate $50 to the National Tourette Syndrome Association, Inc. for each member of their community that completes this survey in full.

*Note:  Incentive payments will be mailed out approximately 2-4 weeks from the completion of the study.

Participate – take the survey: Please copy and paste the following link into a new browser window: http://survey-na.researchnow.com/wix3/p1117761234.aspx?src=98

Job Discrimination and Work Place Experiences of Adults with Tourette Syndrome - Online Survey Nationwide

Participate in this online survey.

Ecopipam Treatment of Tourette’s Syndrome in Subjects 7-17 Years NY, NJ, IL, OH and GA

Psyadon Pharmaceuticals is seeking children (7-17 years) with Tourette’s Syndrome to take part in a multicenter, double-blind, placebo-controlled randomized, cross-over study to test the efficacy of ecopipam for the relief of their neurological symptoms.

Ecopipam has previously been shown to cause a statistically significant reduction in tic scores in an open-label study in adult subjects with Tourette. This study is designed to examine its activity in a controlled clinical trial in children. To learn more about the study please visithttp://clinicaltrials.gov/show/NCT02102698.

To participate in the study, please contact the study site closest to you:

New York:
North Shore – Long Island Jewish Medical Center
Feinstein Institute for Medical Research
350 Community Drive
Manhasset, NY  11030
Contact: Dr. Cathy Budman; Mr. Bibu Jacob, Study Coordinator
Telephone: (516) 562-1012
E-mail:  CBudman@nshs.edu, bjacob3@nshs.edu

New Jersey:
Atlantic Neuroscience Institute/Overlook Medical Center
99 Beauvoir Avenue
Summit, NJ  07902
Contact: Dr. Roger Kurlan, Ms. Caroline Panter
Telephone: (908) 522-5901
E-mail: Roger.Kurlan@atlantichealth.org, caroline.panter@atlantichealth.org

Ohio:
Cincinnati Children’s Medical Center
3333 Burnet Avenue
Cincinnati, OH  45229-3039
Contact: Dr. Donald Gilbert, Ms. Twila Rogers
Telephone: (513) 636-0599
E-Mail: donald.gilbert@cchmc.org, Twila.Rogers@cchmc.org

Georgia:
Emory University Hospital
1841 Clifton Rd. NE
Atlanta, GA 30329
Dr. Jorge Juncos, Ms. Cathy Wood-Siverio
Telephone: (404) 728-4782
E-Mail: jjuncos@emory.educwoodsi@emory.edu

Illinois:
University of Chicago Medical Center
5841 S. Maryland Ave
Chicago, IL 60637
Contact: Dr. Jon Grant, Ms. Sarah Redden
Telephone: (773) 702-9066
Email: jongrant@uchicago.edu, sredden@uchicago.edu

6/24/14

The Influence of Playing a Musical Instrument on Tourette Syndrome Symptoms Tampa, FL

Eligibility: To be eligible the participant must have a diagnosis of Tourette Syndrome and be between 5 and 65 years of age.  In order to complete the survey, participants must be 18 years of age or older or the parent/guardian of a diagnosed minor who may legally answer the survey questions on their child’s behalf. Participants with a diagnosis of intellectual disability, serious mental health disorder, serious behavior disorders, sensory impairments or major neurological disorders are not eligible.

Study Design: This survey seeks to identify commonalities of the influence of musical instrument playing on subjects that have been diagnosed with Tourette syndrome. Volunteers will be asked to answer questions about the effect, if any, engaging in a musical activity has on his/her symptoms. (Pro00017048).

Please contact Mr. Brown by clicking on the email link below or calling him for further questions.

Contact: Wm. Chris Brown
Tel: 813-997-2137
email: Wm. Chris Brown

6/24/14

Evaluating Use of Dysport for Vocal Tics in Tourette Syndrome Farmington Hills, Michigan

Researchers at the Detroit Clinical Research Center are conducting a pilot study in Tourette Syndrome as part of an effort to evaluate the use of Dysport in reducing vocal tics in patients diagnosed with Tourette Syndrome. This study involves an injection of Dysport to the vocal chords. Interested adults (age 18-45) with TS should contact:

Brittany Cronin, MS
CNS Research Operations
30160 Orchard Lake Road
Farmington Hills, MI, 48834
248-716-7009
brittany.cronin@dcrc.us

Christopher Clement
Research Assistant
30160 Orchard Lake Road
Farmington Hills, MI, 48834
248-737-5939
christopher.clement@dcrc.us

Kimberly Rooker, BS
Research Manager
30160 Orchard Lake Road
Farmington Hills, MI, 48834
248-716-7011
kimberly.rooker@dcrc.us

Detroit Clinical Research Center will defray travel expenses and pay a volunteer fee.

June 2013.

Cholinergic Interneurons in Tourette Syndrome Ann Arbor, MI

Cholinergic Interneurons in Tourette Syndrome
Ann Arbor, Michigan

 

Researchers at the University of Michigan are conducting a brain imaging study in Tourette Syndrome as part of an effort to understand the brain changes underlying Tourette Syndrome.  This study is sponsored by the National Institutes of Health (NIH).  This study involves a nuclear medicine brain imaging method called Positron Emission Tomography (PET) scanning.  Interested adults (age 18-45) with TS should contact:

Christine Minderovic
UM Functional Neuroimaging, Cognitive, and Mobility Laboratory
24 Frank Lloyd Wright Dr.
Suite B1000, Box #362
Ann Arbor, MI, 48105
734-998-8400
cmindero@med.umich.edu

Or

Dr. Roger Albin
UM Dept. of Neurology
5023 BSRB,
109 Zina Pitcher Place,
Ann Arbor, MI, 48109-2200
734-764-1347
ralbin@med.umich.edu

University of Michigan will defray travel expenses and pay a volunteer fee.

Neurofeedback for Tourette Syndrome New Haven, CT

Neurofeedback for Tourette Syndrome
New Haven, CT

 

Researchers at Yale University are recruiting volunteers aged 11-19 to evaluate fMRI neurofeedback for Chronic Tic Disorder or Tourette Syndrome.

The aim of this study is to train participants to control activity in a region of their brain that has been associated with the urge to tic, thereby reducing tic symptoms.

Participation requires 8 visits to the Magnetic Resonance Research Center over the course of one month for interviews and scans. Participants may receive up to $600. Participating families may also be eligible for reimbursement of travel costs. To learn more about the study please click here.

For more information please contact Christopher Walsh at 203-737-6055 or email him.

Safety, Tolerability, Pharmacokinetic, and Efficacy of AZD5213 in Adolescents With Tourette's Disorder CA, FL, NJ, NY, OH, UT

Safety, Tolerability, Pharmacokinetic, and Efficacy
of AZD5213
in Adolescents With Tourette’s Disorder

CA, FL, NJ, NY, OH, UT

 

AstraZeneca is seeking adolescents (12-17 years) with Tourette Syndrome to take part in a multicenter, randomized, two-part study to test safety, tolerability, pharmacokinetics and efficacy of a compound called AZD5213.

To learn more about the study please click here.

To participate in the study, please contact the study site closest to you:

California:
Neuropsychiatric Research Center of Orange County
1010 W. Chapman Ave
Orange, CA 92868
Contact: Daniella VanBlitter
Clinical Trial Outreach and Recruitment Coordinator
Tel. (714) 289-1100

Florida:
University of South Florida
Rothman Center for Neuropsychiatry
880 Sixth Street South Suite 460
Children’s Development and Rehabilitation Center
St. Petersburg, Florida 33701
Contact: Camille Hanks
Tel.727-767-8230
e-mail: chanks@health.usf.edu

New Jersey:
Atlantic Neuroscience Institute

Overlook Medical Center
99 Beauvoir Avenue
Summit, NJ 07901
Contact: Caroline Panter
Tel. 908-522-5901
e-mail: caroline.panter@atlantichealth.org

CRI Life Tree, NJ Research Center, Marlton, NJ

Contact: Dr. David Krefetz
Tel. 856-334-6062 x211
e-mail: DKrefetz@crilifetree.com

Lisa Wilkins
Tel. 1-866-610-7171
e-mail: lwilkins@crilifetree.com

Jacquelyn Bordelon
Tel. 1-866-610-7171
e-mail: jbordelon@crilifetree.com

New York:
Icahn School of Medicine at Mount Sinai
1240 Park Avenue
New York, NY 10029
Contact: Laura Ibanez
Tel. 212-659-1676
e-mail: laura.ibanez@mssm.edu

Movement Disorders Center
North Shore University Hospital
400 Community Drive
Manhasset, NY 11030
Contact: Arif Hafeez
Tel. (516) 562-3224
e-mail: AHafeez@nshs.edu

Ohio:
Cincinnati Children’s Hospital Medical Center
Cincinnati, OH 45229-3026
Contact: Fran Laube
Tel. (513) 636-9758
e-mail: Frances.Laube@cchmc.org

Utah:
Lifetree Clinical Research, LC.
Salt Lake City Research Center
Salt Lake City, UT
Contact: Cher Struck
Tel. 801-269-8200.
e-mail: CStruck@CRILifetree.com

Aspen Clinical Research
Orem, UT
Contact: Linda Packard
Tel. 800-530-0998
e-mail: linda@aspclinic.com

Anxiety, Stress and Executive Function in Children with TS Immaculata Univesity, Immaculata, PA

Anxiety, Stress and Executive Function in Children with TS
Immaculata Univesity, Immaculata, PA

 

Eligibility: A study to examine Anxiety, Stress and Executive Function in children with TS. To be eligible the child must have a diagnosis of Tourette Syndrome and be between 7 and 17 years of age. Children with a diagnosis of intellectual disability, serious mental health disorder, serious behavior disorders, sensory impairments or major neurological disorder are not eligible.

Study Design: A packet of material that includes 3 questionnaires and a sheet to log tics over a period of one week will be mailed to you. Upon completion, material will be returned to the researcher in a provided addressed, stamped envelope.

Compensation: Name will be entered into a drawing to win a $50 gift card

Contact: Caitlin Kilmer
Tel: 610-457-9880
email: ckilmer@mail.immaculata.edu

 

10/2013